ADVOCACY

Parry Romberg Foundation founders, Jay and Donna Sperry and their daughter Kelley, have been advocates for PRS awareness and research since Kelley was diagnosed with the condition in 2000. They have worked to bring Parry Romberg Syndrome to the media's attention, resulting in articles in numerous publications. Read more on the About Kelley page or by viewing the links at the right.

The Parry Romberg Foundation continues to promote awareness and research by communicating with media representatives, policy makers, insurance companies, and the medical community.