Welcome to the Parry Romberg Foundation Web site. Here you will find information about
Parry Romberg Syndrome—what it is, how it affects lives, where to find support, and what researchers
are learning about this rare disease.
The Parry Romberg Foundation is a nonprofit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors, and communities.
